Supportive care needs of parents of children with cancer: transition from diagnosis to treatment.
نویسندگان
چکیده
PURPOSE/OBJECTIVES To analyze research related to the pediatric oncology population supportive care needs from diagnosis to treatment. DATA SOURCES Articles published from 1992-2002. DATA SYNTHESIS 49 studies were included. All six categories of the Supportive Care Needs Framework were found, with most studies addressing one to three of the need categories. Informational (88%) and emotional (84%) needs were identified most frequently. CONCLUSIONS No one study examined the entire range and types of supportive care needs from diagnosis to treatment. This knowledge is key to planning appropriate care and services. Future research should be directed at understanding the full constellation of needs encountered by parents during this time. Further refinement of the Supportive Care Needs Framework is required to fully define the categories of need. IMPLICATIONS FOR NURSING Although more research is required, supportive care that focuses on informational and emotional support appears to be most important from diagnosis to treatment. Using a conceptual framework such as the Supportive Care Needs Framework provides a methodology for planning care based on needs.
منابع مشابه
Iranian Parents' Supportive Umbrella during their Children Surgery: a Qualitative Study
Background Being in a position of vulnerability, distress and uncertainty reduces the ability of the parents to protect their children and makes them need support from others. The first step to aid clients more is to identify their supportive sources. This study aimed to determine parents' experiences of supportive sources during their children surgery. Materials and Methods This is a descripti...
متن کاملComparing the needs of families of children dying from malignant and non-malignant disease: an in-depth qualitative study.
OBJECTIVE To examine the experiences of bereaved parents concerning the care provided to children who died from cancer compared to those who died from a non-malignant condition. DESIGN An in-depth qualitative study with bereaved parents of children who died as a result of a life-limiting diagnosis, recruited through two regional centres. RESULTS Although parents' accounts displayed commonal...
متن کاملبار مراقبتی والدین کودکان مبتلا به سرطان و عوامل مرتبط با آن
Background & Aim: Caring for children with cancer is a distressing experience for parents. This experience can lead to parents’ care burden. This study explored care burden among parents of children with cancer and its related factors. Materials & Methods: In this cross-sectional descriptive study, 85 parents of children with cancer who referred to Shohada Hospital in Tajrish, Tehran wer...
متن کاملInvestigation of the Caregiver Burden and Related Factors in Parents of Children with Down Syndrome 4 to 12 Years in Tehran During 2020
Objectives: Having a child with disability has a profound effect on the family and can impose many problems and challenges on parents. Children with Down syndrome (DS) are a large group of children with special needs who are at risk for chronic physical illness, developmental problems, behavioral and emotional problems. These problems create more health and care needs in these children. Therefo...
متن کاملLife Experience of Parents with Amblyopic Children in Contact with Health Care Providers
Objectives: Amblyopia is most common binocular vision anomalies. To comprise is decrease of visual acuity witch doesnchr('39')t remove by optical correction. Nowadays because of the psychosocial problem with amblyopia, is a functional disability. Awareness of parents of children with amblyopic life experience, when facing with curing system can provide effective for promotion of self-assessment...
متن کاملذخیره در منابع من
با ذخیره ی این منبع در منابع من، دسترسی به آن را برای استفاده های بعدی آسان تر کنید
عنوان ژورنال:
- Oncology nursing forum
دوره 31 6 شماره
صفحات -
تاریخ انتشار 2004